When Brooke was diagnosed with life threatening peanut
allergies, we were told that there was no cure.
The only treatment we could provide our child, was a life of strict
avoidance. In case of accidental exposure, we were prescribed an epi-pen and
taught how to use it. It soon became
apparent that our entire world needed to be restructured. First, we had to “un-poison” our home. I remember raking through all the food in our
pantry and cupboards and throwing everything away that had a peanut warning on
the label. At every subsequent grocery shopping
trip, we had to check and recheck labels to make sure we weren’t buying foods
that could potentially kill our child.
Gone were the days of spontaneous trips to a restaurant… from that point
forward, each restaurant had to be called beforehand, so we could check if
there were safe foods, or any risk of cross contamination. Brooke’s environment, no matter where she
was, needed to be checked for peanut-residue-landmines that could have been
anywhere. Dog treats had to be checked
before Brooke could let the dog lick her. Shopping carts had to be wiped down
before Brooke could sit in them. Public
picnic benches and tables needed to be avoided at all costs. And then, there
was the need to educate others… which is always difficult when you’re trying to
walk a thin line between keeping your child safe and pissing off the person who
has to be inconvenienced in order to accommodate her needs.
Unfortunately all of this knowledge didn’t come all at once.
We’ve learned bits and pieces along the way.
We are still learning. We have had to learn to employ extraordinary
vigilance at all times. We’ve
encountered people who think we are crazy or overreacting or seeking
attention. We’ve encountered people who
are hostile because Brooke’s food allergies inconvenience them. We’ve encountered all kinds of circumstances
and attitudes that have surprised us and upset us and everything
in-between. For the most part, people
have been kind, caring, compassionate, understanding and most importantly accommodating,
which is a huge blessing… it makes the pissed off people easier to
tolerate. Ü
There really should be more education on it. As I listen to a an advisory on TV about “shingles” at this very moment, I wonder why I haven’t seen or heard a thing about the dangers of Anaphylaxis. I had no idea such a thing existed until I met you. I can’t imagine being in your shoes. The people that feel (and aren’t afraid to show) inconvenienced, would get on my nerve on a daily basis. Not sure I could handle it. So happy that there may be a way for her to overcome this. I believe it should definitely be more affordable, but glad you have chosen to make the sacrifices necessary to get it done. That little girl (and ANY person) deserves to live a normal life without fear. I can’t wait for the day that you announce she has outgrown all her allergies!
ReplyDeleteEvie, I wish everyone thought the way you think. The day that Brooke no longer has to fear a food will be the best day of our lives.
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